About The New England Sickle Cell Consortium (NESCC).
About Us
The NESCC is dedicated to enhancing the treatment of individuals affected by sickle cell disease (SCD) and providing unwavering support to patients, families, caregivers, and communities grappling with the challenges of SCD.
The NESCC is a regional cooperative group of New England Stakeholders established in 1999, devoted to the education, research, advocacy, support, and comprehensive holistic care of patients and families living with sickle cell disease. The Consortium works to advance clinical care, quality, and research related to the care of individuals with SCD, educate the group’s stakeholders, and be involved in community advocacy to further the well-being of individuals with SCD.
WE EMPHASIZE:
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Support its members in giving voice to the healthcare needs of patients with SCD, in forums that have the power to palpably impact the lives of those living with SCD or affected by it.
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Recognize, address, and work to eliminate the racism and health-related stigma that our patients and families experience within and beyond the healthcare setting.
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Recognize the importance of the patient voice by including patients, families, and community based SCD organizations within the structure of the NESCC such that the patient voice is included in setting the research, advocacy, and education agenda for all consortium activities.
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Provide mentorship and a local support structure for any healthcare professional, (including physicians, advanced practice providers, nurses, social workers, community health workers, psychologists, patient coordinators, trainees) who are already involved or have interest in becoming involved in the care of individuals with SCD to expand the community of informed and active SCD providers in the region.
Associated Member Organizations:
Find Sickle Cell Disease Support:
We’re proud to work directly with NESCC Members to advance our joint mission.
Members work together to advance the mission of the Consortium by participating in Consortium leadership, and the Annual Consortium Symposium planning to advance topic and speaker ideas, and facilitating attendance by patients and their families.
